This site is for the reporting of cases of specified birth defects to the Tennessee Department of Health. Due to the risk of microcephaly and other neurologic birth defects associated with Zika virus, there is an important need for timely identification and comprehensive follow-up. With support from CDC, the Tennessee Birth Defects Surveillance System (TNBDSS) data will be used to monitor any changes in the incidence of these birth defects, ensure timely referral to services, and enhance care coordination for affected children in Tennessee.

Thank you for your efforts to protect, promote, and improve the health and prosperity of people in Tennessee.

To continue directly to the reporting form, click here.


Case Definition for Reporting

For an infant/fetus to be included in the birth defects system, the following criteria must be met:

  • The infant must be a Tennessee resident at the time of report.
  • The child must be under 5 years of age.
  • The child must be born on or after January 1, 2017.
  • The infant/fetus must have a confirmed diagnosis of at least one of the conditions in the following table.

Birth Defect

ICD-10-CM

Brain abnormalities with and without microcephaly

Confirmed or possible congenital microcephaly

Q02

Intracranial calcifications

No specific code; may be included under Q04.8, Q04.9

Cerebral atrophy

No specific code; may be included under Q04.3

Abnormal cortical formation (e.g., polymicrogyria, lissencephaly, pachygyria, schizencephaly, gray matter heterotopia)

Q04.3, Q04.6, Q04.8

Corpus callosum abnormalities

Q04.0

Cerebellar abnormalities

No specific code; may be included under Q04.3

Porencephaly

Q04.6

Hydranencephaly

No specific code; should be included in Q04.3

Ventriculomegaly / hydrocephaly

Q03.0-Q03.9

Fetal brain disruption sequence (collapsed skull, overlapping sutures, prominent occipital bone, scalp rugae)

No specific code. This might be coded as microcephaly or another single brain malformation, or all the components that might be coded individually: Q02, Q04.8, Q04.9

Include the following abnormalities only if co-existing abnormalities of the brain have been diagnosed: Q67.4, Q75.8, Q75.9, Q82.8

Other major brain abnormalities, including intraventricular hemorrhage in utero (excluding postnatal IVH)

Q04.0, Q04.3-Q04.9, Q07.00, Q07.02

Neural tube defects and other early brain malformations

Anencephaly / Acrania

Q00.0-Q00.2

Encephalocele

Q01.0-Q01.9

Spina bifida

Q05.0-Q05.9, Q07.01, Q07.03

Holoprosencephaly / Arhinencephaly

Q04.1, Q04.2

Eye abnormalities

Microphthalmia / Anophthalmia

Q11.0-Q11.2

Coloboma

Q12.2, Q13.0, Q14.1-Q14.8

Cataract

Q12.0

Intraocular calcifications

Q13.8, Q13.9, Q14.1-Q14.9

Chorioretinal anomalies involving the macula (e.g., chorioretinal atrophy and scarring, macular pallor, gross pigmentary mottling and retinal hemorrhage); excluding retinopathy of prematurity

No specific code. This might be coded under the affected part of the eye: Q14.1-Q14.9

Optic nerve atrophy, pallor, and other optic nerve abnormalities

Q14.2, H47.03

Consequences of central nervous system (CNS) dysfunction

Congenital contractures (e.g., arthrogryposis, club foot, congenital hip dysplasia) with associated brain abnormalities

Q65.0-Q65.9, Q66.0-Q66.9, Q68.8, Q74.3

Confirmed congenital deafness documented by postnatal testing

H90.0-H90.8, H90.A, H91.0-H91.9, Q16.0-Q16.9

For issues or questions about Tennessee Birth Defects Surveillance, contact the Division of Family Health and Wellness at Birth.Defects@tn.gov or call 615-741-7353 & 615-532-8494.

See the CDC Birth Defects website for more information about the conditions listed above.

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